Hunter’s Story

Published 11:46 pm Saturday, October 6, 2007

Maye was born on March 6, 1992 and was raised in McNeill by his parents Gary and Rhonda Jones. In 2004, the family moved to Tennessee.In January, 2006 he was diagnosed with Wegener’s Granulomatosis, a very rare Vasculitis Disease, usually affecting adults between the age of 40 — 50. He is one of 239 children known in the world at this time to have this disease.

The treatment for this disease keeps him on immunosuppresant, anti-metabolite and corticosteroid drugs along with many other medications and multiple antibiotics to fight infections.

Since his diagnosis, he has had 8 surgeries, completed 3 rounds of chemotherapy, had a PICC line to run IC antibiotics for the treatment of Staph infection in his lungs, and in July this year went into renal failure.Hunter has had a tough road to say the least.Vanderbilt Children’s Hospital in Nashville are his healthcare providers and they have requested twice that the family take Hunter to Cleveland Clinic in Cleveland Ohio to be seen by a specialist.The family leave again today, October 7 to visit the Cleveland Clinic.

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There is no cure for this disease. No one knows what causes it. The only plan that the healthcare providers have to treat the rare disease is a maintenance plan where Hunter will have to be on High Risk Medications until he goes into remission.

Hunter’s family still reside here in this area and hope you will support he and his parents with prayer. Hunter’s grandparents are Harold and Barbara Goodwin and his aunt and uncles are Jeffrey and Tammy Goodwin, Shannon and Gary Culpepper, Melanie Farrell, Lawrence and Brandie Goodwin along with five first cousins.

As they fight to keep Hunter with them, the hospital bills are mounting high, as of September the total is $88,721.43 and with extra travel and many more procedures ahead the financial struggle is overwhelming.The family requests first and foremost, the prayers of those who hear about Hunter’s story.

If anyone is interested in making a donation for Hunter Maye, an account is set up at First National Bank in Picayune in his name.

This little Hunter’s story should motivate us all to appreciate the blessing of health that our children have and to always be willing to help when others are facing such catastrophic events.